If you follow this blog I apologize, I haven’t kept up with
it. A lot has happened since my last post.
I’ve had many tests since my last post and some of the results
are, I have vertigo (though not caused by MS it seems to be exacerbated by my
MS) which explains why I’m dizzy a alot. I had a neuropsychology exam which
concluded I scored above average where others with MS score below but I do have
short term memory issues. Basically, I have to work extra hard to remember
things. The worse though is I have optic neuritis in my right eye which explains
why I’m half blind when I’ve exerted myself or mid-day comes around. My last
MRI in November (2018) was a six-month checkup of starting Tecfidera and it showed
a new, but inactive lesion in my brain. However, since it is inactive my neurologist
wants to wait until my next MRI in May to see if nothing changes from then
before deciding to change my medication. And lastly, I’ve had to step down/quit
my job that I held for twelve years because I just couldn’t do it. My last day
was March 28. That was the hardest of it all. So yeah, it has been a crazy last
six months.
How I feel daily is tiredness and fatigue, dizziness and
weakness and a rollercoaster of emotions. With my optic neuritis whenever I
exert myself, even minimally I lose my sight. Even just showering causes vision
issues. So looking for a job is hard. My wife Tracie is amazing and is now the
primary breadwinner and all I can do is stay at home doing chores or help her
in her law office as long as I can see. So that is my update.
I do hope to get back blogging regularly, I hope. So stay
tuned, please.